I will kick off with some good news. PSA has dropped from 66 (May 24) to 48. That’s a pretty good outcome, so the additional layer of hormone therapy is doing its job.

The not so good news is that I can still only muster a whisper when I speak. And I have a bad cough. The oncologist said that the hormone therapy is unlikely to be a quick fix for the damaged vocal cord nerve, if at all. So the plan is to talk to a radiation oncologist to find out if they can zap the tumour to shrink it. Even if they can shrink the tumour it may not help if the damage to the vocal cord nerve is permanent. Anyway, I am getting too far ahead of myself.

Fortunately, I am not suffering severe side effects from the additional hormone therapy. I have loss of appetite, but that is OK. Minor dizziness is a worry, but OK. Increased fatigue is a pain. Shortness of breath is annoying. Unstable emotions is difficult. Yucky mouth taste is bearable.

The oncologist is also checking to see if a speech therapist may be able to help. Seems like a long shot to me, but it always good to have a wild card.

The whole process is moving too slow for me. They are going to talk to the radiation oncologist who has treated me twice before, so hopefully things will speed up. He has been brilliant, so fingers crossed he can weave his magic again. Quickly.

I cannot help but wonder where I would be now if they jumped on this when the scan in early May showed the tumour growing. However, contemplating “what ifs” will only do my head in, so I have to try to accept that it is what it is.

I am feeling very tired and emotionally flat, but things will pick up if we can make some progress soon.

Good health and happiness to all. Cheers, Phil

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2 Responses to MIXED NEWS

  1. psatozero says:

    Too bad you are having such a hard time. As if pca is not enough, you have these extra problems. At least the psa has improved so that is a positive. Let’s hope the radiation oncologist can do some magic. Thinking of you and your family.

  2. V.J. Knutson says:

    So many things you are dealing with Phil. My husband did hormone therapy so I know how complicated that can be. The waiting on medical for answers is crazy-making. Take care.

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